Matthew Spohr discusses the aggregate prevalence of rare diseases in the United States while recounting his late wife and stepson's experiences with porphyria.
“There are as many people in America, excuse me, suffering from a rare disease as there are people suffering from cardiac disease.”
quote is from the automated transcript, cleaned for reading:
filler sounds and stutters are removed, nothing is rephrased. names can be misheard
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More from Matthew Spohr
AssertionSupported
Spohr: Sex-Oriented Advertising Sustained Alternative Newspapers in Early Days
“Believe it or not, also one thing that sustains a lot of alternative newspapers, especially in their early days is sex advertising or sex oriented advertising. So things like strip clubs sex toy shops escorts, even they're all legal businesses, but they're not…”
Matthew SpohrDec 13, 2022▶ 8:09He Closed the Paper the Same Month He Buried His Wife
Insight
Spohr: Men Are Conditioned into Destructive Shame When They Experience Failure
“Men are programmed to always be strong, to never fail, to always have an answer, to always be capable, and if you fail on those things, it's shameful. You have failed as a man. And I think that's something guys need to get over.”
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Insight
Spohr: Caregiving is a major opportunity for entrepreneurial innovation
“I think we need to see things like caregiving as a place that is fully worth entrepreneurial thought as much as anything else. It's a huge area that needs to be better. And lots of entrepreneur entrepreneurs would look for what's a big area that needs to be be…”
Matthew SpohrDec 13, 2022▶ 42:04He Closed the Paper the Same Month He Buried His Wife
Disclosure
Spohr: Early Microsoft technical writing earnings built seven-figure portfolio
“I was a lucky English major who got to be a technical writer at Microsoft and very early on, like we're talking way back in the Reagan administration, frankly. And that was good for me. It wasn't as good as the developers I know who made piles of money at the …”
Matthew SpohrDec 13, 2022▶ 1:01He Closed the Paper the Same Month He Buried His Wife
Insight
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“I think distribution comes back to the question of audience. Like distribution is how do you reach your audience? How do you reach them in the best way? And so to solve distribution, you need to understand your audience. Where are they looking for your content…”
Matthew SpohrDec 13, 2022▶ 15:32He Closed the Paper the Same Month He Buried His Wife
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