The Ledger
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Sethi: Patients can legally demand their medical records via API or email
“Patients are actually outside of HIPAA, so you can ask, as a patient, a HIPAA-qualified entity to do something for you and share your information, whether it's through an API or whether it's through a PDF or email, and they have to do it.”
Sethi: Apple Health Records is built on acquired Glimpse technology
“Tanya used Glimpse, which is a former company. Apple acquired it in a transaction, and some of the health records that we see them releasing it to the world, Is some of that technology.”
Sethi: Over 90% of clinical trials fail to recruit enough patients
“Most clinical trials, upwards of 90% or worse, don't get filled, and it's because there's no frictionless way for a clinical trial's inclusion-exclusion criteria to detect a candidate patient.”
Sethi: Top EHR vendors hold only 6% of individual digital health data
“If you took the top few vendors For electronic health records, and you reduce the entire U.S. Population down to those vendors. Those vendors, in aggregate, will hold about six percent of all data being generated digitally on you today.”
Sethi: Retiring boomers will be far more engaged in their healthcare
“So people are going to retire and become more engaged than their parents were in their own health care.”
Sethi: Health data products must target highly self-incentivized patient groups
“We actually think in order to operationalize health data, you have to find self-incentred people, and that is cancer patients, lupus, HIV, autoimmune disease.”
Sethi: Most released medical data is unstructured documents, not coded data
“Most of the information that's released is not in any coded form. It's documents and PDFs and XML files.”
Sethi: Cancer pathology data remains inaccessible through standard electronic health APIs
“A lot of the cancer information is in the pathology report which doesn't come out of APIs yet.”
Sethi: Digital health data fragmentation will outpace EHR vendor consolidation
“Even if there's a consolidation of vendors in the marketplace, which we predict there will be, and I think that's going to be a good thing, the consolidation is going to be outstripped by the runaway fragmentation in digital data.”